Today we met with Sooner Start to determine our "plan" for the next 12 months. Both of the women that are working with us have been absolutely amazing. They have been kind, compassionate, and show true affection for our sweet Halle.
We had to write out an evaluation of Halle. I was able to tell Ellen about Halle's blood test coming back great, kidney ultrasound was a good report and we have another appointment next week. She was amazed at how on top of things we are and that our doctor is really on top of things! (Really felt like an encouragement from the Lord about how well Dr. Stacey has taken care of us through this process.) The only thing she wanted us to try to do was have a regular hearing exam done. Thankfully we see a ENT at Children's every month for Halle's larnogomalacia, so we will have them check her hearing too!
Halle slept through the beginning of the appointment, but when she woke up she was SO happy! She sat up and talked to Ellen the whole time. Ellen, our therapist, said she thought we should redo her test because of how much she has improved in the last few weeks!
It was really fun being able to tell these two women that although Halle has been diagnosed with Williams Syndrome and the diagnosis says we should expect delays in her developmentally, my goals for Halle are that she will not only meet the development standards of normal kids but exceed them! So we set our expectations for next August as...
-Halle will be taking 5 consecutive steps
-Halle will be able to say at least 4 words
-Halle will be able to respond to at least 2 commands
-Halle will be able to draw on paper with a crayon
The last few days Halle has been extra fussy, not her normal personality at all. I was hesitant to call the doctor because I didn't want them to just assume it was colic because of her diagnosis. This afternoon she was running a slight fever, so I called Cathleen to look at her ears for me. Halle's ears look perfect, but she does have a bad case of thrush. I'm thankful for the diagnosis and believing for quick healing!
*My computer isn't working right now, so I can't download pictures. I'm hopeful to get it working this weekend. Until then...no pictures:-(
1 comment:
praise Jesus for the good reports! He is SO good! we can't wait to celebrate with you guys next August, and even earlier when she is taking steps and coloring!! we love you Halle Beth!!
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